Motor neuron disease (MND) is a rare condition that progressively damages parts of the nervous system. This leads to muscle weakness affecting gripping, walking, speaking, swallowing and breathing, often with visible wasting.
People with MND are included in the “increased risk” category and it is vitally important that they receive ongoing support and clinical care whilst maintaining their protection.
Working in collaboration with Sheffield Institute for Translational Neuroscience we are developing a programme that will enable their clinicians and carers to deliver support and clinical care virtually to patients with MND via MyPathway in the next few weeks.
Health related questionnaires will be sent to the patient via the MyPathway app and clinicians will be able to view patient’s responses remotely via the MyPathway clinical portal and send reassuring messages, instructions and allocate relevant resources from an MND resource support library. Automated prompts will also be sent to the app at appropriate time intervals as a gentle reminder for the patient to complete any vital self-help tasks or activities proposed by the clinician.
After the release of this new MND pathway, we will be looking to develop the patient support further with the addition of remote tracking of important MND health indicators such as weight, blood pressure, grip strength and respiratory function.
More information on MyPathway and how we are supporting the COVID-19 outbreak can found here or contact firstname.lastname@example.org